Rachel Turner one of the founding members of IIH UK wrote a poem back in 2004 which really does sum up the way it can make you feel and describes how I felt constantley the first 6 months after getting hospitalised in November 2011.
Now I get these symptoms in waves, my headache never leaves me, but the rest are there in the background rumbeling away.
Any donations are to IIH UK a registered charity who publish the poem.