The Northwest have a IIH regional group that I set up in 2012 have their first meet up that year. It was a great turn out and for many was the first time they had meet others with the condition.
From here the group continued to meet at different towns around the northwest with a solid core group in attendance and others coming and going as they felt they needed the support or it was close to them. Parents, friends and children also came along making it a true support and friendship group.
Due to IIH and other conditions I have been unable to arrange meet ups for a while, then Covid kicked in. Other in the core group will help once we feel ready to meet up again and if my memory and health on the day is good enough I can attend.